A Double Shot of Happiness by Judy Sharp Allen and Unwin 2105 ‘TIm Sharp’s extraodinary Journey from being diagnosed with autism to becoming an internationally renown artist’ and an incredible mother’s story of her journey and fight for the rights and life understanding for her child . https://m.youtube.com/watch?v=78VbeiAbcYI. TEd x talk with Judy and Tim (Tim aged 25) here they talk about his success with Beak Man and his journey .
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'The Spark describes in glowing terms the profound intensity with which a mother can love her child' Andrew Solomon, author of Far from the Tree 'Extraordinary. A story of triumph against the odds and it's one that [Kristine] Barnett insists other parents can learn from' Sunday Times Kristine Barnett's son Jacob has an IQ higher than Einstein and a photographic memory. At nine he developed an original theory in astrophysics that may earn a Nobel Prize. But Jake's story is all the more remarkable because his extraordinary mind was almost lost to autism. When the experts wanted to restrict his behaviour - staring at shadows on the wall, stars, patterns - Jake withdrew into his own world. But against all the advice, Kristine decided to follow Jacob's passions - his 'spark'. The results were beyond anything anyone could have imagined. Dramatic and inspiring, The Spark is about the power of love and what can happen when we tap the true potential that lies within every child. 'If you have a child who's 'different' - and who doesn't? - you won't be able to put it down' Sylvia Nasar, author of A Beautiful Mind 'Every parent and teacher should read this fabulous book!' Temple Grandin, author of Thinking in Pictures and co-author of The Autistic Brain 'Astonishing, remarkable' Mail on Sunday 'Amazing, compulsive reading. Barnett not only fights heroically on Jake's behalf, she also beats down every other obstacle that life hurls at her and her family' Washington Post
About the AuthorKristine Barnett is the mother of Jacob Barnett and his three younger siblings. She runs a daycare that includes both typical and special-needs children. She is also the founder of MyJacobsPlace, a non-profit organization designed to help children with autism, as well as an award-winning sports league for autistic children.
MY REVIEW : This is another extraodinary example of a parent who has to advocate for their child in order to help others see “the Spark” in a child . This child was thought to never be able to read or even speak without extreme therapy and intervention and then and only then, it would be marginal- never normal. It shows the journey parents face with a child with autism and 2 key messages spring to mind
About the AuthorKristine Barnett is the mother of Jacob Barnett and his three younger siblings. She runs a daycare that includes both typical and special-needs children. She is also the founder of MyJacobsPlace, a non-profit organization designed to help children with autism, as well as an award-winning sports league for autistic children.
MY REVIEW : This is another extraodinary example of a parent who has to advocate for their child in order to help others see “the Spark” in a child . This child was thought to never be able to read or even speak without extreme therapy and intervention and then and only then, it would be marginal- never normal. It shows the journey parents face with a child with autism and 2 key messages spring to mind
- P58 .. He needed me to be his advocate, his champion, he needed me to be his voice ."
- You can't 'fix' them so foster the Spark and understand them
When Horse Became Saw: A Family's Journey Through Autismby Anthony Macris
When Anthony Macris' son was diagnosed with autism, he and his partner Kathy had two choices: do what they were told – and could afford – or do what they thought best. This is the tragic, joyful, instructive story of how they confronted the condition that changed their lives.
Before the onset of autism, Alex was a vibrant, healthy little boy, Anthony and Kathy the happiest of parents. Afterwards Alex was struck mute, barely able to recognise them. From then on, all that mattered was finding the right treatment.
But how to do this, for a disorder with no known cause and no cure? Eventually Anthony and Kathy decided to take control of their son's therapy themselves, turning every aspect of their lives around in the process. It took a long time, but the radiance did return to Alex's face. By then he was a completely different person, and so were his parents.
When Horse Became Saw is an extraordinary account of Alex's regression and his family's search for answers, an invaluable guide through the obstacles and decisions faced by anyone in their situation. It beautifully paints the emotional world of a father who finds himself in the strange country of autism – and something of a stranger in his own country, whose government refused to fund the therapy his son so desperately needed.
Above all it enriches our understanding of those who are profoundly different yet have so much to give
MY OPINION: An excellent book from a father's perspective- again showing the incredible frustration and battles of a parent in discovering their child is not "normal" and trying to find out how to deal with it and what to do.
http://www.health.govt.nz/publication/new-zealand-autism-spectrum-disorder-guideline
Link to NZ Spectrum Disorder Guideline ... 2016 V 2
Structure of the ASD Guideline
The guideline is divided into eight parts.
Part 1 covers the identification and initial assessment of children, young people and adults with ASD.
Part 2 focuses on how best to provide support to people who share their lives with individuals who have ASD. It also outlines the personal health needs of people with ASD.
Part 3 covers educational principles and interventions for children and young people growing up with ASD and guidance for education sector organisation and management.
Part 4 covers the management of behavioural, emotional and mental health difficulties that can be experienced by people with ASD and provides evidence-based guidance on how these difficulties can be prevented, minimised or alleviated.
Part 5 focuses on the support needs of people with ASD within the community setting, covering a variety of aspects from transitioning from secondary school into adulthood to dealing with the criminal justice system.
Part 6 focuses on the requirements for professional learning and development for individuals or groups who come into contact with people with ASD, from awareness raising to highly specialised training.
Parts 7 and 8 cover the perspectives and experiences of Māori and Pacific people with ASD and explore issues of information needs, diagnosis, assessment, support, access, services and treatment decisions for these populations.